Strategic council | APPG on Primodos
Advisers

Strategic council

The scientists, journalists and campaigners whose evidence and reporting underpin the APPG’s work.

Photo of Professor Neil Vargesson
Professor Neil Vargesson
Chair in Developmental Biology, University of Aberdeen

An award-winning developmental biologist best known for research explaining how thalidomide causes birth differences. His lab’s studies of Primodos components in zebrafish embryos have provided fresh experimental evidence, and he has advised UK, German, Canadian and Australian government bodies.

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Professor Carl Heneghan
Director, Centre for Evidence-Based Medicine, University of Oxford

Led the systematic review and meta-analysis of Primodos studies first published in 2018, covering over 70,000 women and finding an association between the drug and congenital malformations. Presented his findings to the IMMDS Review and continues to advise APPGs on the evidence.

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Professor Tim Lewens
Professor of Philosophy of Science, University of Cambridge

Head of Cambridge’s Department of History and Philosophy of Science and a Fellow of Clare College. His research examines how expert committees have reasoned about the Primodos evidence, and he helped convene a Cambridge conference on the contested history of hormone pregnancy tests.

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Professor John Abraham
Professor of Sociology & Pharmaceutical Policy, Brighton and Sussex Medical School

A founder of the field of pharmaceuticals and society within sociology, with three decades researching drug regulation. His work has scrutinised the relationship between medicines regulators and the industries they oversee, including the handling of the Primodos case.

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Marie Lyon
Chairwoman, Association for Children Damaged by Hormone Pregnancy Tests (ACDHPT)

Has led the campaign for justice for Primodos-affected families for decades and acts as secretariat to the APPG. Awarded a BEM in the King’s Birthday Honours in 2024 for her services to the campaign.

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Jason Farrell
Home Affairs Editor, Sky News

Led a six-year investigation into Primodos, culminating in the 2017 documentary Primodos: The Secret Drug Scandal, which uncovered archival evidence of correspondence between the UK regulator and the drug’s manufacturer.

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Liz Lane
Producer, Sky News

Long-time investigative partner to Jason Farrell, producing Primodos: The Secret Drug Scandal and continuing to report on the campaign in the years since.

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Sadia Ali
Senior Parliamentary Adviser

A senior parliamentary adviser with over 16 years’ experience in Westminster. Has coordinated the APPG’s work on Primodos since 2013 alongside Marie Lyon, helping secure six parliamentary debates, support from over 130 MPs and Peers, and three government-commissioned reviews, including the IMMDS Review.

Photo of Barrister Charles Feeny
Charles Feeny
Barrister

Has provided legal expertise and support to the APPG’s campaign. Acknowledged in the Group’s 2024 report A Bitter Pill: Primodos for his contribution to the case for reform.

All-Party Parliamentary Group on Primodos

APPGs are informal, cross-party groups of MPs and Peers with no official status within Parliament or the Government. This site is maintained by the Group’s secretariat.

© All-Party Parliamentary Group on Primodos.